About Mollie: An answer after 42 years When Mollie and her family found out in February of 2021 that she has Jansen de Vries Syndrome, a 42-year mystery was solved. Prior to this unexpected news, her diagnosis was Cyclic Vomiting Syndrome (CVS) and undiagnosed global developmental delay. Mollie was a year and a half old…
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Noah’s Story Over Noah’s first 4.5 months his mother Nicole spent countless hours and sleepless nights contemplating the cause of the myriad of symptoms that he was having. The twins were born at 37 weeks and 2 days and Noah did not require any time in the NICU. Over the next several weeks to months…
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About Wells Wells was born at thirty seven weeks to his mother, Rachel. The pregnancy was mostly normal, except for excess amniotic fluid. Healthy at birth, he was discharged after two days in the hospital. At twelve weeks, Wells underwent surgery for three hernias. Around three months, Wells was diagnosed with laryngomalacia (underdeveloped vocal cords) which…
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About Daniel Daniel is 15 years old. He lives with his dad, mom, and older sister. He loves seeing his grandmother Lena daily and has many family members in South Africa and Australia. Early Years Daniel was born at term after an uncomplicated pregnancy. Still, his parents and the medical team knew right from the…
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