Have you or a family member recently been diagnosed?  We are glad you have found us. Please register here to help us keep track of this small, but growing community and to receive important JdVS udates!  

For Questions or Concerns, please feel free to email us!

General Questions:

info@jansen-devries.org

Donations:

donations@jansen-devries.org

Address

The Jansen de Vries Syndrome Foundation
PO Box 14
Natick, MA 01760