Meet Ryan

By Kara Kilroy | February 24, 2021

Meet Ryan and the Stearn Family Ryan’s Race for Change Article About Ryan’s Path to Diagnosis Ryan’s School Community Showing Support

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Happy babies in a bouncer

Meet Noah

By Rachel Horne | February 19, 2021

Noah’s Story Over Noah’s first 4.5 months his mother Nicole spent countless hours and sleepless nights contemplating the cause of the myriad of symptoms that he was having. The twins were born at 37 weeks and 2 days and Noah did not require any time in the NICU. Over the next several weeks to months…

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Smiling kid looking at camera

Meet Wells

By Rachel Horne | February 19, 2021

About Wells Wells was born at thirty seven weeks to his mother, Rachel.  The pregnancy was mostly normal, except for excess amniotic fluid.  Healthy at birth, he was discharged after two days in the hospital.   At twelve weeks, Wells underwent surgery for three hernias.  Around three months, Wells was diagnosed with laryngomalacia (underdeveloped vocal cords) which…

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Smiling kid looking at camera

Meet Daniel

By YokoCo | January 9, 2021

About Daniel Daniel is 11 years old. He lives with his dad, mom, and older sister. He loves to see his grandmother Lena every day and has many family members in South Africa and Australia. Early Years Daniel was born at term after an uncomplicated pregnancy. Still, his parents and the medical team knew right…

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