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JDVS
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    • 2023 JdVS Summit-Charlotte
    • 2025 JdVS Summit-Chicago
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    • Treatment Guide* for Patients and Families
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JDVS
  • About
  • JdVS Foundation
  • Community
  • Events
    • 2023 JdVS Summit-Charlotte
    • 2025 JdVS Summit-Chicago
  • Resources
    • Treatment Guide* for Patients and Families
    • Clinical Considerations* for Medical Professionals
    • Medical Advisory Board
  • Donate & Support
  • Register

Privacy Policy

About Us

JdVS (“us”, “we”, or “our”) operates https://jansen-devries.org (the “Site”). This page informs you of our policies regarding the collection, use and disclosure of Personal Information we receive from users of the Site. We use your Personal Information only for providing and improving the Site. By using the Site, you agree to the collection and use of information in accordance with this policy.

Information Collection & Use

While using our Site, we may ask you to provide us with certain personally identifiable information that can be used to contact or identify you. Personally identifiable information may include, but is not limited to your name (“Personal Information”).

Log Data

Like many site operators, we collect information that your browser sends whenever you visit our Site (“Log Data”). This Log Data may include information such as your computer’s Internet Protocol (“IP”) address, browser type, browser version, the pages of our Site that you visit, the time and date of your visit, the time spent on those pages and other statistics. In addition, we may use third party services such as Google Analytics that collect, monitor and analyze this data.

Communications

We may use your Personal Information to contact you with newsletters, marketing or promotional materials and other information that we feel is relevant to your interests.

Cookies

Cookies are files with small amount of data, which may include an anonymous unique identifier. Cookies are sent to your browser from a web site and stored on your computer’s hard drive. Like many sites, we use “cookies” to collect information. You can instruct your browser to refuse all cookies or to indicate when a cookie is being sent. However, if you do not accept cookies, you may not be able to use some portions of our Site.

Security

The security of your Personal Information is important to us, but remember that no method of transmission over the Internet, or method of electronic storage, is 100% secure. While we strive to use commercially acceptable means to protect your Personal Information, we cannot guarantee its absolute security.

Changes to this Privacy Policy

This Privacy Policy is effective as of January 1, 2019 and will remain in effect except with respect to any changes in its provisions in the future, which will be in effect immediately after being posted on this page.

We reserve the right to update or change our Privacy Policy at any time and you should check this Privacy Policy periodically. Your continued use of the Service after we post any modifications to the Privacy Policy on this page will constitute your acknowledgment of the modifications and your consent to abide and be bound by the modified Privacy Policy. If we make any material changes to this Privacy Policy, we will notify you either through the email address you have provided us, or by placing a prominent notice on our website.

Contact Us

If you have any questions about this Privacy Policy, please contact us.

Latest News

  • Meet Uzziah July 28, 2021
  • Meet Ryan February 24, 2021
  • Meet Noah February 19, 2021
  • Meet Wells February 19, 2021
  • Meet Daniel January 9, 2021

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About JdVS

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Resources

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Get in touch

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We look forward to meeting you.

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© 2021 JdVS

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Disclaimer

Disclaimer: The information provided on this website is to inform and help families cope with the unexpected change in their life due to a JdVS diagnosis. The information contained on this site is not intended to replace information you have received from doctors or other health professionals. We are not doctors, we are parents of individuals diagnosed with JdVS.

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