What makes JdVS kids unique? Navigating the unique presentation and combination of underlying complexities is a challenge, as are the moments of unadulterated joy and happiness. Finding and then balancing the line between silliness and engaged learning was the most rewarding part. What strategies have been helpful in working with someone with JdVS? Use of…
Other names: PPM1D, IDDGIP Small hands and feet Hypoplastic nails Short stature Broad forehead Low-set posteriorly rotated ears Upturned nose Broad mouth with thin upper lip Expressive eyes and high arching eyebrows
Other names: PPM1D, IDDGIP Excess amniotic fluid in utero Hernias Hypotonia Laryngomalacia Feeding and gastrointestinal issues Gastroesophageal reflux Constipation Periods of unexplained vomiting (sometimes with fever) Visual issues Myopia (nearsightedness) Hypermetropia (farsightedness) Strabismus (crossed eyes) High pain-threshold Sound sensitivity Original Publication on JdVS/PPM1D Variant
This book was inspired by one of our beautiful JdVS kiddos! Avery by Marta Altés
Each individual with JdVS is unique and may need additional supports within the learning environment. This resource can help parents/caregivers navigate their child’s needs within the school environment.
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