This book was inspired by one of our beautiful JdVS kiddos!
Avery by Marta Altés
Disclaimer: The information provided on this website is to inform and help families cope with the unexpected change in their life due to a JdVS diagnosis. The information contained on this site is not intended to replace information you have received from doctors or other health professionals. We are not doctors, we are parents of individuals diagnosed with JdVS.