Dr. Lachman’s iPS Cell Research at Einstein Medical

By Kara Kilroy | February 24, 2021

Dr. Herbert Lachman, a scientist at the Albert Einstein College of Medicine, and a JdVS Medical Advisory Board Member is one of the first researchers to use iPS cells to study neurodevelopmental disorders. He is also one of the first to use a gene editing tool called CRISPR to introduce IDD and autism mutations into…

Guidance from a Teacher

By Kara Kilroy | February 24, 2021

Recommendations for Educators Teaching a student with JdVS is truly a once in a lifetime experience. A good team of specialists and educators will be essential when moving forward with academic goals for the student. In the classroom is important to remember that you will see a full range of emotions from a student with…

JdVS/PPM1D Publications

By Kara Kilroy | February 10, 2021

  Jansen-de Vries syndrome: Expansion of the PPM1D clinical and phenotypic spectrum in 34 families   De Novo Truncating Mutations in the Last and Penultimate Exons of PPM1D Cause an Intellectual Disability Syndrome  

Common Physical Attributes Associated with JdVS

By Kara Kilroy | February 10, 2021

Other names: PPM1D, IDDGIP Small hands and feet Hypoplastic nails Short stature Broad forehead Low-set posteriorly rotated ears Upturned nose Broad mouth with thin upper lip Expressive eyes and high arching eyebrows